Local Woman Who Died of Rare Disease to Have Skeleton in Mutter Museum

Philadelphia’s Mutter Museum celebrated rare diseases day Thursday with a special reveal honoring a local woman who had one of the rarest diseases there is. Carol Orzel was one of about 900 people in the world to suffer from fibrodysplasia ossificans progressiva, known as FOP. The disease causes soft tissues to turn into bone. Orzel’s life was focused on education, and her final wish was to have her skeleton on display at the Mutter Museum.