Help Casey Get New Rooms - NBC 10 Philadelphia

Help Casey Get New Rooms



    Rooms for Casey

    A 7-year-old boy suffering from a rare genetic disease needs a wheel-chair accessible bedroom and bathroom. (Published Monday, Nov. 1, 2010)

    A Barrington single mom is seeking help for her 7-year-old son.

    Casey Umba suffers from Chromosome 8-P, a rare genetic disorder. His case is one of only 15 known cases around the world.

    As a result, Casey is severely physically and mentally disabled and completely dependent on his mother Suzanne for all his needs.

    Suzanne must lift and carry her son everywhere, a task that has gotten increasingly difficult as her son continues to grow.

    “I have pulled my back out a couple of times,” said Suzanne. “It’s very, very difficult and it’s getting harder for me to lift him and to move him from place to place where he needs to be.”

    Suzanne, who lives with her parents in a split-level Barrington home, is trying to get a handicap accessible bedroom and bathroom built onto the main level of the house. In order to get this she needs a minimum of $10,000.

    “She’s embarrassed to have to do this,” said Suzanne’s mother Barbara Walter. “But it’s not about her. It’s not about anybody but Casey."

    Casey’s family is selling tickets for three fundraisers that will help them raise money for the rooms.

    The first event takes place on November 13, 7-10 p.m. at the Roadhouse in Barrington. The second takes place on November 29, from 7 to 9 p.m. at Adelphia’s in Deptford. Finally, the last fundraiser takes place on December 5, from 7 to 10 p.m. at Coffee Works Roastery & Café in Vorhees.

    For tickets, or to make a donation, please make checks payable to the "Casey William Umba Fund." Include a note specifying the name of the event and the number of tickets. Mail to PO Box 84, Barrington, NJ, 08007. 

    For more information, please call 856-520-1033.